we are about to sign on the red line.
i have given God till tomorrow at three to confirm that this house is the house.
if there are no other properties out there for us by then we will sign on the red line.
it's one year.
the house is gorgeous & we need a place to live.
it will feel good tomorrow to learn where we are going to live for the next year.
we had some very informative appointments in the past week.
today we met with the new ot-kim & the new speech pathologist.
these therapists are going to work with us for as long as they can.
kim went over the sensory profile with us...
mason has been diagnosed with Sensory Integration Disorder...
he has been scored to be on the high end of the disorder.
he is low registering...
meaning it takes a lot to give him feed back.
ie...
a stroke on his arm doesn't give him the normal affection it would give you & me...
he needs a tight squeeze to feel the same "good" feeling.
we have been instructed to squeeze mason's head when he acting socially acceptable at the table.
yes mason loves to have his head squeezed...lol
the problem with mason is that too much makes him flip the opposite direction...
and everything for him is too much.
so we have to learn his triggers & learn to help him feel.
we will need to invest in a weighted blanket...
this is specially made for children with Sensory ID...
it should help him sleep...
feel comforted.
these blankets run around $200...
i wish for once something wasn't a total rip off.
we are looking into specific chew toys that should help mason with his biting.
the speech said mason's words are good...
but he has poor communication skills with his words...
poor eye contact...
very little play skills...
no idea about social aspects in life.
so in the last week & a half we have two medical diagnoses for mason.
1. severe developmental oral motor dyspraxia of the swallowing function.
2. sensory integration disorder.
at this point neither of these will help get us funding...
when we figure out the bigger picture it will definitely help.
mason starts formal A testing this monday...
butterflies fill my tummy.
life feels tight these days...
a real tight squeeze...
unlike mason...
i.don't.like.it.
i am praying for answers & stability.
this family needs some stability.
i am looking for someone willing to help us put together some routines...
then put them on poster boards.
please let me know if you can help?
I'm posting from my phone and don't have the links infront of me but I will get them tomorrow - there are instructions online for making weighted blankets. Hopefully you know someone with a sewing machine!!
ReplyDeleteThere is more and more research that links many learning and developmental difficulties to poor communication and synchronisation between the two brain halves. An effective way of improving the processing functions in the brain is to listen to specially altered sound or music through headphones as pioneered by Dr. Alfred Tomatis (Tomatis method) and Dr. Guy Bérard (Auditory Integration Training - AIT).
ReplyDeleteNow there is a new Sound Therapy Programme which has been specifically developed with the aim to improve sensory processing, interhemispheric integration and cognitive functioning and it is entirely free to download and use at home. It has helped many children and adults with a wide range of learning and developmental difficulties, ranging from dyslexia, dyspraxia and attention deficit/hyperactivity disorder to sensory processing disorders and autism. It is not a cure or medical intervention, but a structured training programme that can help alleviate some of the debilitating effects that these conditions can have on speech and physical ability, daily behaviour, emotional well-being and educational or work performance.
Check out the Free Sound Therapy Home Programme from Sensory Activation Solutions. There is no catch, it's absolutely free and most importantly often effective. Find it at: http://www.uk.sascentre.com/uk_free.html.