February 10, 2011

Another reason I love this Man.

Today was a follow up appointment for Mason at the GI clinic.
These appointments are at least two hours long and I usually have to go to them on my own with Mason.
But we have a lovely girl who took care of Carter for us today so Nick and I go to take Mason together ALONE!

So going into this appointment we see the GI Dr. an OT, Dietician and a social worker.
It is alot of people who need to have their time to speak and get info.
Mason only needs to be in the room while the Dr. is talking and doing his exam, after that Mason  has had enough. 
The other people only need me...so I sent Nick out of the room with Mason.
They could go for a walk, play out in the waiting room or whatever...
So off they went!

I get through all the different discussions and my brain is now fried...
 and its about an hour and a half later.
I finish up with the thank yous and goodbyes.
I go to put everything in my bag and see my phone flashing so I pick it up.
There was 28 messages all from Nick and Mason:

Do you have the other shoe?

Found it

Coffee now or later?

What's up?

R u still in there?


Why don't you respond?


R u alive?

Have you been kidnapped?

I'm getting worried...

Is everything ok?



Where are you?

Your coffee is getting cold

When are you coming back?

Have you left us forever?

We are sorry for whatever we have done please come back.

We miss you

Have you fallen?

Can you get up?

Are you sure?

Ok I think we are going home now.

I guess it's just me and the boys now.

We will miss you.

I hope you will miss us too.

Needless to say I came out of a stressful and NOT fun appointment laughing to a cold coffee.
Oh and the "fallen" joke is a reference to me falling down the stairs yesterday...
Yes, I hurt and bad.

Oh how I love him.

February 8, 2011

The Last week.

Last friday I finally had it.
I called the company we are working with for Mason and told them I was hiring someone.
Mason has this money that is just sitting there...waiting for everyone to get the game together.

I have and feel completely out of control of our lives right now.
I have no idea what is going to happen in the next few months.
I have no idea where we are going to live...
if we are going to get the funding that Mason really needs...
And what therapy is going to look like. 
Everything is out of control.

So I took control of one thing.
I hired this lovely girl.
She actually took charge a couple of times and dealt with Mason's meltdowns great.
It's only the second day,
I am just hoping that she is okay with our crazy family...lol
Hopefully this works out for as long as it needs to work out.

Today I feel a little lighter.
And you know what, it feels really good.
I actually have been able to cook the boys dinner two nights in a row, NOT in the microwave. 
It maybe silly, but I cried tonight.
Just thinking about how great it was to be able to cook something on the stove.
I miss the "normal" that used to be our life.
I am just so looking forward to being able to do somethings that a Mom should be able to do.
I don't think I will take for granted actually being able to cook wholesome food for my family again.
I also got to go to the bathroom by myself TWICE today...lol
It's going to be weird always having people in my house, but I guess it's the new "us" for this season of our lives.

So we were on the news today. 
Kinda loving the editing they did...
They edited it to look like I said that Mason's feeding pump cost $7000, I actually said that Variety gave us $7000 worth of supplies. They are really good at editing...go figure.
Anyways...just thought you other tubie Mom's would want to know we didn't get ripped off for the price of our pump.
Variety-The Children's Charity has there annual "Show of Hearts" Telethon on this weekend.
For those who don't know without Variety I don't even know what would have happened.
They have been there when NO ONE else was or could be.
They bought Mason his feeding pump and the cute (but not so cute) little backpack Mason carries around.
Mason will also be on the Telethon this Sunday from 1-2 and 2-3pm on Global BC TV.

Here is the link to watch the story from today...
They say the Camera adds ten pounds...
I am so going to go running as soon as I own a pair of running shoes.
Anyone got a pair of size seven Nikes... lol!

My Blog Design business is starting to pickup and it is really exciting.
I currently have two giveaways for Blog Designs so go over to DBD to enter!

Hope you all have a great week!

The Sears Fam