Wow, where does time go?

Where to start?

Josh is a easy place!

He finished school on July 30 & has been counting the days down to going back ever since. 

Josh starts his new School on Sept 7, 2010.

my son will be a kindergartener.

some Mom's are sad about there kids going to school, will cry the day the start.

NOT ME! 

I couldn't be more excited, I as well have been counting down the days, hours until school opens.

Josh is so bored & unhappy at home, I can cannot keep him bust enough & he hates all the appointments for Mason. 

I am with him there. 

Josh will be going to private school, I know expensive.

I know that is where God wants him & he will provide a way,

but it freaks me out.

I at least know I don't have to worry as much as I would in public school.

Sex education starting in Kindergarten is outragious.

And my son doesn't need to know about what being Gay "means" at this age.

thanks, but no thanks. 

I want the chance to talk to my sons when its right to talk to them.

The "Birds & Bees" talk will come.

Carter.

Well Carter went to the Ear, nose, & throat Dr. late July.

Just as I suspected...

He needed his adenoids out & tubes in his ears.

So extactly two weeks later Carter went in for his surgery.

He has been eating more & seems to have a lot better time breathing!

They said his adenoids were so big he couldn't breath through his nose!

I am so glad that we have done this.

As you know Carter has had difficulties with eating, 

with the surgery his volume of food has doubled! 

Everytime there is food in sight he says "Foo".

 People he has words!

I have to say that not that Carter is older & doing things so much faster than Mason.

It has become more clear just how behind Mason is.

Which now brings us to Mason.

What.a.month.it.has.been.

We have a new Pediatrician who seems so on top of Mason's need & what we need to be doing.

He is going to be applying for the "At-Home" program on behalf of Mason this time.

This Dr. is asking for the Moon, the sun & the stars on behalf of M.

We are praying that this time we get on & I am believing we will.

Here's why.

At the very beginning of the month we went to Genetics.

I thought nothing would come of it, they would say it's someone elses problem.

But shockingly after reading Mason's file & seeing & measuring Mason...

they came up with something.

Something that they thought was quite "probable".

This was shocking.

Normally when you go to Genetics they say nothing & do a overall Gene test.

So when they said, "We are going to do an overall test, BUT we think it is probable that Mason has "Smith-Magenis Syndrome".

I kind of sat there for the next twenty minutes in shock, trying to listen to every word.

The Dr. explained that they don't usually test for specific stuff right away, but he ticks so many of the boxes. 

Shocking. 

Now we will find out sometime in September if he truly does have "Smith-Magenis Syndrome"

If this is his path in life, I am glad we found out now. 

If Mason does have a Genetic Syndrome then he will qualify for funding.

It will be very bitter sweet for us I think.

To learn more about "Smith-Magenis Syndrome" click here

We have also been to the Eye Dr. everything is looking alright for now!

We also saw Mason's new GI team, yes a WHOLE team.

For a total of 4.5 this month we have sat in a room, 6 of us & decided an action plan.

Mason has been through to more tests this month & even got a few days to try thin liquids. 

Unfortunately liquids were a definite no go.

Not surprising but it would have been welcomed.

We are now waiting to here what they come up with for a plan to help Mason eat more safe solids.

There have been many other appointments & in time I will no more of the outcome.

For now everyone is waiting on the result from Genetics.

I try not to think about it & then the shock of it hits me again.

I just really want to know.

On  completely different path we are going camping this weekend & next.

We have also decided to go to drive down to Cali next year so I can attend a Conference.

We plan to camp our way down & back, also making a few stops, maybe Disney for a day or two? To do this we will be looking for a CHEAP & I mean cheap tent trailer. 

We love camping & can't wait till next Summer when everyone is that touch older. 

The reason I haven't Blogged in quite a while is...

I have been taking some courses on Blog designing & trying to figure out HTML code.

Many hours have been spent & I am close to having it all figured out.

The hope is I can get a Blog Design Business going & make some money from home. Believe it or not there is a lot of business & there is money to be made.

Speaking of Money. 

We have been having a lot of trouble financially as most people do.

Nick has his hours at work changed for training & I lost money from the government.

We have not been able to do much of anything & Mason is extra expensive at this time of the year.

Please pray that we get Government funding. 

We are again at the end of the line.

Trusting on God to provide.

Sorry it has been awhile!

This post will be followed I promise with one filled with pics from the last Summer month!

~you asked, I am giving~

Thanks for all your thoughts in the past month.

I have been quite down lately with stress & I love your pick me ups!

Dana

Almost {who am I kidding} Wordless Wednesday...now Friday

So this was meant to be posted on Wednesday for his 1st b-day, but we all came down with the flu. Better late than never!
_______________________________________________________________

Dear Carter,

Today is your 1st Birthday.

It is really hard to believe that time has passed so quickly...

you will always be my Baby.

You have brought so much Joy to this family,

more than one could ever expect.

You are a gift from God...

the reason I smile the most in each day.

When times are dark you smile,

you laugh,

you bring calm to the storm,

you are the reason we realize what we have is so much more than we give God the credit for.

You have taught Daddy & I to have more Faith, 

to live like nothing can't be over come.

You have taught Josh to love & to be gentle. 

You have taught him what little brothers need.

You are why Mason waves hello, 

why he claps his hands & you keep teaching.

I know that you were given to us from God for a greater reason than to be our son.

I am give it all to the Lord.

You are destined for Greatness...

don't you ever tell let anyone tell you otherwise.

You are my ham & my Baby Car-Car.

I love you more than I thought I could.

 Happy 1st Birthday Car-Car.

You were born on July 28th, 2010 & your Big brothers loved you instantly!

You tuckered us all out within the first two days & then we took you on your first hike.

When you were hospitalized & scared us all. We are so happy you are now doing SO well.

 

Daddy & Mommy lovin times.

Your first smile & playing with your brother.

 

Our Nanny that lasted 2 months...maybe you can see why? 

Your first Christmas.

You have my heart.

 

What big eyes you have!

 

The biggest snot bubble I have ever seen & dead to the world.

 

You are definitely my most mischievous baby.

Loving all your bums!

First time climbing & first ice cream cake.

 

You are my baby who eats & sleeps. My dream come true!

Trying to walk & fooling around with Josh.

 

You are one of the loves of my life and I love you even if you eat & poop sand.

Being naughty not sitting in your high chair at your birthday dinner. Which ended early b/c you started puking.

You are definitely a cutie pie & we love you so much.

Love your Daddy, Mommy, Josh & Mason.

there can be Hope.

A meeting.

we have been working for the last couple of months on creating a society.

it has been formed.

"Mason's Story Society"

this society is for Mason.

the society now has 5+ Board Members who will help us make decisions about Mason's care.

there is a non-profit Society called Vela Microboarding.

http://www.microboard.org/

they are helping us with this & will be taking Mason's "service" needs to the government.

this will provide 1 on 1 services for Mason & respite for us.

oh what sleep could feel like?

Vela along with "Kids Matter" are also helping us with getting Mason's proper diagnose.

they are also helping us get our package together with all the evidence we need for the government to support Mason through the "At-Home" program. 

This program should cover Mason's feeding and medical supplies.

many calls have been made & many not returned...

but we will get M the help he deserves.

we feel Hope.

it's not something we have felt in awhile so it's exciting.

We are also getting ready & we are getting excited about the 2 month long Variety-The Children's Charity Coin Drive! 

In this Coin Drive we will be representing The City of Surrey, trying to raise money to help families like ours. 

I have been talking with Dianne Watts, Mayor of Surrey & it looks like she is on Board to help.

SO EXCITED!

Please keep us in your thoughts & prayers in the next couple months as we battle the government to give Mason the care he needs.

Almost Wordless Wednesday.

Just a little cuteness to add to your day!

I just had to show you Carter eating, he is doing SO much better!

First ice cream cake & first time eating with a plate!

Mason having is PH Prob test (tube in his nose) & a broken feeding pump. So he was stuck to an IV pole for 3.5 days!

Mason's roaring face to show he has his Backpack back (no more pole) & is ready to take you on!

Josh with his Preschool teachers who are also doing his summer school program!

Josh has been so grumpy lately, so many of my pics look like this cute angry face.

Being 4/5 is tough you know!

Josh says he is 4/5 because his clothing says 4/5.

My new way of saving $$$ is coupon shopping.

Got all of this for $8.34

Just in case you were wondering...

Have a great day!

Do you have comments?

Thoughts & Comments

I love having your thoughts & comments.

I am a person who has a hard time talking about my feelings to others.

I have a hard time getting my thoughts out with verbal speech.

I am a very visual person.

I do not like talking about my feelings face to face.

I am not able to process when someone calls, asks about my feelings in the last blog.

And then would like me to answer their question, without the time to think things through!

My feelings are on the page because I can't talk about them.

I like writing about my feelings so I can see them.

I like to walk away, think about what is said...

Sometimes over analyze.

But I like a moment to myself to visualize and decide on how the comment fits.

You see it's not that I don't appreciate what others say...

I just need a moment to process.

This Blog is how I share my deepest feelings without feeling uncomfortable.

When I talk to someone face to face I tend to put my emotions to the side, hopefully without seeming cold or harsh.

We have been through a lot in the past 7 years.

The past 3 were the hardest for myself.

It has been recommended that we seek counseling to help us feel...LOL

This would be very hard for me to do face to face.

To share my feelings with someone staring at me as I ramble, because I can't see my thoughts.

This is why this Blog is so good.

Therapeutic if you will.

So with all this said,

I love your comments and thoughts.

They mean alot to me.

I really never thought that this Blog would become what it has.

I didn't really think anyone would care to read my thoughts.

But I care about reading yours.

I love my life and whatever way God intends for it to flourish.

I am not and will never pretend to be a writer.

My grammar is aweful, I know that.

I don't really care.

This is my way of seeking therapy.

My way of venting and telling those who want to listen.

My way of "doing it".

So Please feel free to leave your thoughts on this Blog.

I appreciate it.